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Triumph Over Cerebral Palsy: Win Charles’ Inspiring Journey

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Life-Changing Challengers
Ever wondered what it takes to turn life's toughest challenges into triumphs? Win Charles, an extraordinary author, motivational speaker, and Ironman competitor, joins us to share her awe-inspiring journey. Growing up in Aspen, Colorado, Win faced the relentless adversity of cerebral palsy and harsh winters, but with her mother's unyielding support and her own resilience, she carved out a path of success and independence. From her move to Phoenix in 2020 to improve her living and training conditions to her ventures in podcasting and writing, Wynne’s story is a powerful testament to human strength and perseverance.

Win opens up about the emotional and physical hurdles she's encountered, including the devastating loss of her mother to a brain aneurysm, a tragedy that propelled her to launch her own podcast in 2012. She discusses the innovative use of technology, like speech dictation and Siri, to break barriers in writing and podcasting, offering a beacon of hope and inspiration to many. Hear about her remarkable experiences in triathlons, from high-altitude training in Colorado to participating in the Kona Ironman, where unique adaptations allowed her to compete and shine.

Currently residing in Phoenix, Win shares her daily routine and the significance of self-advocacy in healthcare, especially for athletes with disabilities. She recounts her battles with back pain and scoliosis, the decision to undergo surgery, and her steadfast determination to live independently. This episode is not just about overcoming challenges; it's about celebrating the victories, big and small, that define an indomitable spirit. Tune in for an uplifting conversation filled with lessons on resilience, the power of a supportive community, and the relentless pursuit of dreams.

Buy Win's Book on Amazon

Contact Win
LinkedIn: Win Charles
Tiktok: @wincharles622
YouTube: @wincharles1195
Website: winatlifepodcast.weebly.com

Have an idea or feedback? Click here to share.

Contact Brad @ Life Changing Challengers
Instagram:
@bradaminus
Facebook: @bradaminus
X(Twitter): @bradaminus
YouTube: @lifechangingchallengers
LifeChangingChallengers.com

Chapters

00:00 - Life With Cerebral Palsy

17:37 - Podcasting, Writing, Disabilities, Triumphs

24:29 - Triathlete Training in Colorado

36:34 - Inspirational Stories of Triathletes

43:53 - Inspirational Conversation on Overcoming Challenges

50:54 - Navigating Disability and Life Challenges

Transcript
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00:00:00.980 --> 00:00:10.146
Hey, welcome to the next episode of Life Changing Challengers, and we're very lucky today to have Win Charles with us today.

00:00:10.146 --> 00:00:10.746
Hey, Win.

00:00:11.628 --> 00:00:13.413
Hi, how are you guys?

00:00:14.301 --> 00:00:17.009
Oh, I'm sure everybody's doing better now that they get to see you.

00:00:17.530 --> 00:00:17.710
Wow.

00:00:19.080 --> 00:00:21.449
So Win is an author.

00:00:21.449 --> 00:00:24.047
She has a few books out right.

00:00:24.047 --> 00:00:30.306
She has I W out right, she has I Win and the novel the View From the Hills.

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And the View From the Hills.

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She's also a motivational speaker.

00:00:34.188 --> 00:00:38.548
She and very close to my heart.

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She is an Ironman.

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She competed in the Kona Ironman and you know what?

00:00:45.125 --> 00:00:47.703
Ladies and gentlemen, I haven't even heard this story yet.

00:00:47.703 --> 00:00:52.000
So we're going to get to that as well, because obviously that's my bread and butter.

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But, wyn, so good to see you, thank you for joining us.

00:00:56.029 --> 00:01:01.031
Can you tell us a little bit about your childhood, how you grew up, where you grew up?

00:01:01.031 --> 00:01:06.799
What was the complement of your family and kind of the story of how you grew up, okay, the compliment of your family and kind of the story of how you grew up.

00:01:06.819 --> 00:01:15.334
Okay, brad, first of all, I'm feeling that number one question for my podcast because I like the way you say that.

00:01:15.334 --> 00:01:22.373
Second of all, I grew up I'm located right now in lovely Phoenix Arizona.

00:01:22.373 --> 00:01:58.254
Yes, we get the heat in the lovely Phoenix Arizona, but that's only in the summer, and hence the reason why I moved down to Phoenix Arizona is because I grew up in cold and cold and more cold, as much asthma which was beautiful, mind you Only child with a disability, and you can only imagine using a system that says you must know Thank you very much, not good.

00:01:58.254 --> 00:02:21.280
And so I lost my dad when I was 32, going on 33, one month before my 33rd birthday, and then I lost my mom in 2010, when I was 23.

00:02:21.280 --> 00:02:27.527
And so I, accidentally, I have all been there.

00:02:28.020 --> 00:02:52.625
I see myself like that, and hence the reason for the move in Phoenix Arizona to Phoenix Arizona is because, even though Colorado's great for triathlete, triathlon, training for triathletes, it's not so great to live and it's not so great to function, especially in the winter.

00:02:52.625 --> 00:02:57.931
Summers are beautiful, but summers they only last, so so on.

00:02:57.931 --> 00:03:07.823
So it's not so great to be functioning, especially with a disability, in Aspen and Aspen is.

00:03:07.823 --> 00:03:23.349
Just Google the word Aspen, colorado, you'll find it and you'll see that Aspen is a plain island of the legend, famous, and the locals are being kicked out of Aspen, colorado, because Colorado is so expensive.

00:03:23.349 --> 00:03:29.147
Colorado was expensive before the up in the Gulf of Woodland.

00:03:31.812 --> 00:03:33.215
Wow, so you left.

00:03:33.215 --> 00:03:34.566
When did you actually make the move?

00:03:36.061 --> 00:03:41.551
I made the move of March of 2020.

00:03:42.193 --> 00:03:45.187
Okay, so you've been in Phoenix a couple of years.

00:03:45.228 --> 00:03:45.329
Yeah.

00:03:48.323 --> 00:03:48.764
All right.

00:03:48.764 --> 00:03:52.790
So what was a day like growing up?

00:03:52.790 --> 00:04:03.813
Just to give everybody a sense of what a day in the life of a child with a parent is when you have a disability like cerebral palsy.

00:04:05.036 --> 00:04:19.670
Okay, well, first of all, this is Don't Make Me Cry, and I apologize right now if you need to pull the tissues out or if I need to pull the tissues out, but I'm going to cry, not to cry.

00:04:19.670 --> 00:04:31.040
But my mom was a champion of disabilities because before she had me she had eight miscarriages.

00:04:31.040 --> 00:04:39.011
So I'm a magical baby, and more ways than one, and she had struggles even having me.

00:04:39.011 --> 00:04:59.449
I was born at 27 weeks, 1 pound 13 ounces, and you people fail to forget that she had asthma on top of having me on top.

00:04:59.449 --> 00:05:19.732
She was pregnant with Ezra, goes into labor, which whereupon they thought she was having blacks and hicks, which blacks and hicks and forced labor, and so they thought she was having blacks and hicks.

00:05:19.732 --> 00:05:34.250
Turns out she was going into a forced labor with me, and this was June 22nd, and so they raised her to the hospital she was supposed to.

00:05:35.060 --> 00:06:05.028
She had a C-section, lands up getting pneumonia after that C-section, and I have to be airlifted out to a children's hospital in Neiman Colorado, whereupon they diagnosed me with cerebral palsy, whereupon my brain slicks out enough to have a brain bleed, a TBI on top of cerebral palsy.

00:06:05.028 --> 00:06:16.288
And I don't talk about my TBI quite much as I should, because my TBI doesn't affect and brain injuries will be brain injuries.

00:06:16.288 --> 00:06:20.187
Cerebral palsy is a lack of oxygen at birth.

00:06:20.187 --> 00:06:23.997
So on top of cerebral palsy I have a TBI.

00:06:23.997 --> 00:06:24.949
Don't know how he got that TBI.

00:06:24.949 --> 00:06:28.149
Don't know how I got that, don't want to know how I got that.

00:06:28.149 --> 00:06:49.047
But yeah, so imagine your mom and you're lying in the hospital bed because you're trying to recover from pneumonia after having a C-section and your daughter is ripped away from you because your daughter's now medically correct.

00:06:49.047 --> 00:07:15.771
And so I was lucky in the sense that I got diagnosed at a very young age, as a baby, because a lot of kids don't get diagnosed until they don't meet their milestones and of course the parents send them to school and they don't meet their milestones and of course the teachers don't know how to deal with them.

00:07:16.360 --> 00:07:29.495
So, getting back to your original question, my mom would get up every single day and she even did this even when she had a brain aneurysm.

00:07:29.495 --> 00:07:30.716
Thank you very much.

00:07:30.716 --> 00:07:37.432
I don't know why she was trying to be a lobby, even when she was deathly ill and had a brain aneurysm.

00:07:37.432 --> 00:07:54.452
But my mom would get up every single day and get me dressed, get me ready for school and make me watch the news, just so I wasn't dumb and knew what was going on news-wise.

00:07:54.452 --> 00:08:02.314
And then my aide would come and get me.

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Aides would come and get me, aids would come and get me.

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We would go to school.

00:08:07.139 --> 00:08:08.225
I would go to school.

00:08:08.560 --> 00:08:24.968
I had aid support through my family because I was very blessed to go to private school and have teachers that were trained in disabilities before they met me.

00:08:24.968 --> 00:08:27.286
So they pretty much knew.

00:08:27.286 --> 00:08:32.570
Once I came walking to the door they pretty much knew that I had CP in it.

00:08:32.570 --> 00:08:42.210
My mom would meet with teachers and my dad would meet with teachers and say, look, our daughter has cerebral palsy.

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What do we do?

00:08:43.293 --> 00:08:44.938
How are we going to educate her?

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And I didn't get PM to the July's education plan until I was in high school.

00:08:50.429 --> 00:09:10.321
I didn't even know what a special ed classroom was until I was in high school because I was mainstreamed, very lucky to go to a private school without a scholarship and my dad was an entrepreneur.

00:09:10.321 --> 00:09:12.667
That's where I get my entrepreneurial spirit.

00:09:12.667 --> 00:09:29.951
And my dad worked on the road doing sound mixing and then he opened up his own home entertainment company without social media, without Facebook, without anything.

00:09:29.951 --> 00:09:33.590
He barely took an ad out of the Yellow Painter.

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So at one point in a small town of Aspen, colorado, he was the only one doing it, and then, when the other competition came in, he trained the other competition on how to do it.

00:09:50.164 --> 00:09:57.922
So and he landed up closing Aspen on the OE in 2010 after my mom died.

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I'm very proud of him, and since then we had lost him.

00:10:03.147 --> 00:10:05.269
We lost him in 2019.

00:10:05.989 --> 00:10:14.437
And so, basically, I had the child, the all child, and I didn't even know I had a disability until I was in seventh grade.

00:10:14.437 --> 00:10:28.296
I figured it out when I was on the soccer team, though how I figured it out was I was watching all my friends kick the soccer ball and I was trying to kick the soccer ball.

00:10:28.296 --> 00:10:30.989
The soccer ball goes sideways.

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I almost falls forward because I'm trying to keep myself up, and typically, when you watch the able-bodied kids, I was the smart kid that watched the able-bodied kids do it too.

00:10:45.211 --> 00:10:55.710
So typically I was like, well, I'm starting to not fall in love when the soccer ball comes sideways and the soccer ball keeps going straight when they kick it.

00:10:55.710 --> 00:11:02.782
And this was in seventh grade, and so I knew in my heart that something was wrong with me.

00:11:02.782 --> 00:11:05.443
In my heart that something was wrong with me.

00:11:05.443 --> 00:11:18.711
But it wasn't until seventh grade that I learned the call letters for cerebral palsy, what is known as cerebral palsy and I knew that an SCP was a hurt.

00:11:18.770 --> 00:11:21.812
My mom drove me to school that morning.

00:11:21.812 --> 00:11:34.279
Then that's the time I got rid of my age, which, by the way, when you're in private school settings, they expect the families to pay for the age.

00:11:34.279 --> 00:11:39.727
That's why public school, where the age are provided, the IEPs are provided.

00:11:39.727 --> 00:11:49.732
Now they expect you to share the dollars for the one-on-one age and slash the tuition for the school.

00:11:49.732 --> 00:11:53.629
So we got rid of the aids that year.

00:11:53.629 --> 00:11:55.967
Seventh and eighth grade, I had no aids.

00:11:56.600 --> 00:12:06.572
My mom thought I was ready to do it on my own, which I was, but my mom failed to tell me that I had cerebral palsy.

00:12:06.572 --> 00:12:32.634
And so she drives me to school one day and she stops at the top of the driveway of my private school and she looks at me straight in the face and she goes when you have a disability called CP, it's going to impact you for the rest of your life.

00:12:32.634 --> 00:12:41.134
Now she drives forward into the parking lot and the next thing she goes to me.

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You have a great day, I'll see you later.

00:12:43.182 --> 00:12:46.303
To me, you have a great day, I'll see you later.

00:12:46.303 --> 00:13:03.138
And I'm like God beloved, I'd like not just imagine my wife and you're like now get out of the car, go to school and go hang out with your friends, and I'm like I'd love to Mom, but don't put that stuff on me, your kid, and so still all the day.

00:13:03.138 --> 00:13:04.739
Why not have a serious me, your kid, and it's real.

00:13:04.739 --> 00:13:05.419
Do all the damage after that.

00:13:05.419 --> 00:13:08.789
Why not have a serious conversation with your kid?

00:13:08.789 --> 00:13:15.696
Take them out of school or take them out to ice cream before you have a serious conversation?

00:13:15.696 --> 00:13:24.331
Don't do it at the top of the driveway, especially at the driveway where your school parking lot begins.

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Thank you very much.

00:13:25.453 --> 00:13:29.250
And so that's how my mom presented me.

00:13:29.250 --> 00:13:36.207
I'm like I love you, mom, but that's the way I presented me and I was a curious kid.

00:13:36.207 --> 00:13:41.384
I knew that something was wrong with me and people will tell you.

00:13:41.384 --> 00:13:54.405
I tried to speak, even in preschool, even when I couldn't speak, and so yeah, but that's the short version, hence the longer version.

00:13:55.019 --> 00:14:03.972
When I had to do my own research on, I had to Google what CP stood for and what CP actually was.

00:14:03.972 --> 00:14:08.480
So I had been Googling in high school what is CP.

00:14:08.480 --> 00:14:14.225
And then Google pops up, before AI.

00:14:14.225 --> 00:14:21.404
Mind you, this was normal Google and this was in about 2002.

00:14:21.404 --> 00:14:30.134
And so I Googled what is, and it pops up the words self-palsy.

00:14:30.134 --> 00:14:45.176
And it pops up 80,000 babies are diagnosed with it, 80,000 babies born with it, and the national color is green and CP is on bulletin.

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It could affect you in 11 ways.

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80,000 babies are born with it.

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And so I'm like, oh boy, here's the complexities.

00:14:55.711 --> 00:15:05.080
But all I knew is I had CP Moving on, and then I get fast-forward to 2010.

00:15:05.562 --> 00:15:11.312
I lose my mom, I start the podcast because I'm like I want to write a book.

00:15:11.312 --> 00:15:13.668
How the heck am I going to write a book?

00:15:13.668 --> 00:15:22.234
And the purple button on my iPhone would answer to my prayers of writing a book.

00:15:22.234 --> 00:15:33.888
And so I typed in Lightning Buck to the purple button on my iPhone and it was iTunes at the time, and purple button happened to be my.

00:15:33.888 --> 00:15:36.649
Purple happens to be my favorite color.

00:15:36.649 --> 00:15:40.429
So I wanted to make the purple button dance.

00:15:40.429 --> 00:15:42.365
And so what did I do?

00:15:42.365 --> 00:15:44.407
Tap on the purple button.

00:15:44.407 --> 00:15:45.480
And of course, do Tap on the purple button.

00:15:45.480 --> 00:15:48.864
And of course there was nothing in the purple button.

00:15:48.864 --> 00:16:03.927
It just sort of dives on Magnified Glass, which is the search button, and I tapped on the little search button, typed it in right, and then I listened to a podcast which is still in existence today.

00:16:04.400 --> 00:16:15.173
It's called the Creative Pen P-E-N by Joanna Penn, and she's a world-renowned bestselling author and self-published too.

00:16:15.173 --> 00:16:25.547
And so one of the things she said was now, she taught me how to write a book, self-publish a book and then market the book.

00:16:25.547 --> 00:16:32.267
And one of the things she said was you're going to have marketer, and I was very lucky.

00:16:32.267 --> 00:16:35.470
I built a fan base as I was buying the book.

00:16:35.470 --> 00:16:47.274
Not only my friends and family were going to buy the book, and then I took the leadership course on how to be a better person with a disability.

00:16:47.274 --> 00:16:54.788
Well, they made me do a vision for it, and that's when I asked my mom Died and I said I want to write a book.

00:16:54.788 --> 00:16:59.331
So 11 people were looking at me like I was nuts.

00:16:59.331 --> 00:17:02.570
You want to write a book, asked me, and my mom Died.

00:17:02.570 --> 00:17:07.692
Be like my dad looked at me as if I went to the assignment.

00:17:07.692 --> 00:17:10.586
I'm like I'm going to do this.

00:17:10.586 --> 00:17:12.164
I was going to figure out a way.

00:17:12.740 --> 00:17:24.666
So I got my iPhone out and started using speech dictation, artificial intelligence, siri, and then I published that book a year later and everyone.

00:17:24.666 --> 00:17:43.630
I published that book a year later and everyone was so shocked and proud that I published the book, except for my gut, Give me a calendar and take me to head off, and so I decided to make it the public button after iTunes dance again and type it in there for all day.

00:17:43.630 --> 00:17:54.467
Well, when I typed it in, cerebral palsy crickets came up nothing as far as cerebral palsy and then I said, ah, this is only my niche.

00:17:54.467 --> 00:18:01.586
Well, I did not for hours and hours alone, but I wanted to give people hope.

00:18:01.586 --> 00:18:11.345
So I started interviewing people day one on my podcast, and that was in 2012.

00:18:11.345 --> 00:18:36.484
And 2011, after the book came out in October, and I have been known to be on writing podcasts, and so I've been doing that since 2011, maybe a little bit before that, and yeah, Wow, so that's like the podcast booming right Right around that point, right.

00:18:36.383 --> 00:18:39.511
Wow, so that's like the podcast booming right right around that point, right, because obviously, podcasting.

00:18:39.511 --> 00:18:44.667
No one seems to remember that the reason why it was called a podcast was because you could get it on an ipod.

00:18:44.667 --> 00:18:47.413
That's why it was called a podcast in the beginning.

00:18:47.413 --> 00:18:58.872
Yeah, because that's yeah, it was 2004 and when the ipod came out, it it was the idea that, oh well, look, there's this iPod, so let's put something together.

00:18:58.872 --> 00:19:01.734
So pod, ipod cast podcast.

00:19:01.734 --> 00:19:03.592
So that's how it all started.

00:19:03.592 --> 00:19:11.372
And we're still calling it a podcast, which means we're still, like giving Apple credit for all of this.

00:19:11.372 --> 00:19:23.199
Oh, yeah, yeah, which is fine, I don't have a problem with it, because they were the first ones to come up with a device that was able to store these audio files where you can listen to them later.

00:19:23.199 --> 00:19:25.352
They were basically the first ones.

00:19:26.204 --> 00:19:33.178
So, first of all, I have to tell you it sounds like you had two of the very best parents ever.

00:19:33.178 --> 00:19:33.898
Yeah, I did.

00:19:33.898 --> 00:19:40.326
Best parents, like, yeah, I did.

00:19:40.326 --> 00:19:45.605
They the ability, the, the fact that your parents went about it this way, where you didn't even know that you had a disability until middle school I think that's fantastic.

00:19:45.605 --> 00:19:53.227
I I mean you, I'm not in that space, but I can imagine how much more confidence you had at that point.

00:19:53.227 --> 00:20:04.675
And it's funny you make it sound funny, but it is actually brilliant the way your mom told you yeah, and quite frankly, she had the.

00:20:05.196 --> 00:20:15.021
I didn't even know what the name was until 2019, how it it happened to me until I asked.

00:20:15.021 --> 00:20:16.704
Dad got quite fun with it.

00:20:16.704 --> 00:20:21.998
I didn't even find out the huge piece of put all until 2019.

00:20:21.998 --> 00:20:29.038
Only because I got emotionally and physically abused by my mom's sister.

00:20:29.038 --> 00:20:31.151
Thank you very much.

00:20:31.151 --> 00:20:48.256
And then I only got emotional and physical abuse, and so I had to do more research on my own disability and why I need health care while I'm getting dressed.

00:20:49.545 --> 00:20:52.575
Wow, how did you come into contact with your mom's sister?

00:20:53.865 --> 00:21:00.845
My mom's sister was in my life when my mom died in 2010.

00:21:00.845 --> 00:21:10.019
By the way, my mom got diagnosed with brain aneurysm and they caught it.

00:21:10.019 --> 00:21:27.335
She picks up an infection in the hospital, died from an infection because her body was so weak, but all in all, she was functioning right up the corner.

00:21:27.335 --> 00:21:51.746
The brain aneurysm and for those of you that don't know what a brain aneurysm is, it's a blood vessel that bursts in the brain and you can get splitting headaches and be licensive and be nauseous and feel terrible, and a lot of doctors don't know how to catch it because they think it's the flu.

00:21:52.165 --> 00:21:53.926
And I have spoken about this.

00:21:53.926 --> 00:22:09.253
I'm about to interview a brain aneurysm survivor another one and I interviewed a husband of a person who lost her life to a brain aneurysm.

00:22:09.253 --> 00:22:11.234
She was a news reporter in New York.

00:22:11.234 --> 00:22:23.641
She was a news reporter in New York and if you look up Lisa Calagasi Foundation, they do brain aneurysm awareness and I have asked her husband twice.

00:22:23.641 --> 00:22:28.923
I said why didn't doctors catch my mom's brain aneurysm?

00:22:28.923 --> 00:22:41.489
He goes when and this was recorded publicly and he goes when.

00:22:41.489 --> 00:22:42.391
Doctors are not trained in brain aneurysm.

00:22:42.411 --> 00:22:45.637
They barely train in the throat, later on, brain aneurysm.

00:22:45.637 --> 00:22:48.984
Wow, so you go ahead and you write this book in 2011.

00:22:48.984 --> 00:22:52.009
You started a podcast in 2012.

00:22:52.009 --> 00:22:54.692
Yeah, that is crazy.

00:22:54.692 --> 00:23:04.315
And I think it's amazing because I mean, because you're you said, you're what 36 now 36, going on 37.

00:23:04.315 --> 00:23:05.508
So 36,.

00:23:05.508 --> 00:23:09.460
So you were 22.

00:23:10.785 --> 00:23:16.891
22, 23 when my mom died, 24 by the time I published the book.

00:23:16.911 --> 00:23:18.314
You at 24.

00:23:18.314 --> 00:23:19.876
That's crazy.

00:23:19.876 --> 00:23:28.386
24 years old, you published a book and then you start a podcast during pretty much when podcasts started to get more popular.

00:23:28.386 --> 00:23:32.865
People started understanding what podcasts were at that point not everybody you still.

00:23:32.865 --> 00:23:38.469
In 2012, you can still walk down the street and go hey, hey, I listened to this podcast, did you?

00:23:38.469 --> 00:23:40.881
And they're like what's a podcast at that point?

00:23:40.881 --> 00:23:41.724
Now, it's a household.

00:23:41.724 --> 00:23:43.229
It's a household definition.

00:23:43.229 --> 00:23:45.113
Oh, that's crazy.

00:23:45.113 --> 00:23:50.705
So what's all right, let's jump into the elephant in the room.

00:23:50.705 --> 00:23:54.375
When did you decide that you were going to do?

00:23:54.375 --> 00:23:55.657
When did you get into triathlon?

00:23:57.184 --> 00:23:58.632
And when did you decide you were going to do?

00:23:58.632 --> 00:24:04.494
Okay, let's jump into the elephant in the room, but but in better here than he's still excited to talk about.

00:24:04.494 --> 00:24:13.980
Yes, yes, just to let you know, triathletes come to Colorado to train because of the altitude.

00:24:13.980 --> 00:24:25.252
So I had the advantage there, because I live in Colorado, you'll see a lot of triathletes, primarily both of Colorado, not so much in Aspen, but both of them.

00:24:25.252 --> 00:24:32.835
You will see a lot of triathletes and a lot of coaches say go to Colorado for a month and train.

00:24:33.545 --> 00:24:42.717
So my teammate decides to say I'm going to surprise for you.

00:24:42.717 --> 00:24:57.967
I'm sitting at my desk and now this is after my mom died and my teammate goes, she calls me, my dad picks up the phone and she goes can I speak to it?

00:24:57.967 --> 00:25:08.449
So the next thing I know my intercom system is going off saying VA wants Boba and VA wants to speak to you.

00:25:08.449 --> 00:25:20.971
And VA says I have a surprise for you and I'm like I'm just so the kid that says don't slice, they cut directly to the trace.

00:25:20.971 --> 00:25:25.795
You know my mom had just died, your aunt had just died.

00:25:25.795 --> 00:25:30.651
So this better not be having to do with your aunt's death.

00:25:30.651 --> 00:25:36.907
This better not have to be doing with your aunt's death.

00:25:36.907 --> 00:25:38.632
It better be a bit of spice.

00:25:38.632 --> 00:25:40.516
But I didn't know what the spice was.

00:25:40.516 --> 00:25:43.563
And despite not having to be doing resilience, it better be a bit of spice.

00:25:43.563 --> 00:25:44.545
But I didn't know what the spice was.

00:25:44.545 --> 00:25:53.051
And you got to remember that I was in physical shape at the time to do Kona whether of any triathlon or anything I had lost weight.

00:25:53.051 --> 00:26:01.436
I mean, if you look at me now, I'm doing a lot better but I was skin and bones because I was bleeding lots of my mom.

00:26:01.436 --> 00:26:08.377
And so it's like, okay, how the heck am I supposed to do the surprise?

00:26:08.377 --> 00:26:16.070
And I'm putting Biden there, but your audio listeners can't see that, and so she goes.

00:26:16.070 --> 00:26:17.194
I have a surprise for you.

00:26:17.194 --> 00:26:20.535
I'm like cut to the chase and don't leave it.

00:26:20.535 --> 00:26:23.788
And I have a surprise for you, and she goes.

00:26:23.788 --> 00:26:41.861
I want to do the Conan Iron man again myself, but I need you to help, because the only way we can get in is under the Iron man foundation.

00:26:41.861 --> 00:26:46.636
The Iron man foundation is no longer in existence.

00:26:47.384 --> 00:26:54.829
I am, when I go back to Kona, which I, which again I'm going back to Kona I'm doing it in a different way.

00:26:54.829 --> 00:26:56.958
We're in the process of talking to Iron man about me doing doing it a different way.

00:26:56.958 --> 00:27:00.555
We're in the process of talking to Iron man about me doing it a different way.

00:27:00.555 --> 00:27:06.433
It's a similar way that I did it last time, and so I said okay.

00:27:06.433 --> 00:27:09.753
I said okay, let me think about this.

00:27:09.753 --> 00:27:19.993
And I got off the phone and said I thought in my mind, how the hell am I supposed to do a triathlon if I'm not in physical shape?

00:27:21.228 --> 00:27:24.311
My mom had just said how the heck am I supposed to do this?

00:27:24.311 --> 00:27:42.724
And you probably tell your clients this you don't say, decide one day on the count, I'm going to do a triathlon, and you don't decide today in your office that I'm going to do a triathlon either.

00:27:42.724 --> 00:27:52.077
You have to train like a man to woman, and that's why we have people like Brad, who's an endurance coach, to gain the strength.

00:27:52.077 --> 00:27:55.354
And so I'm like what am I supposed to do?

00:27:55.354 --> 00:27:57.402
And so I get like what am I supposed to do with?

00:27:57.402 --> 00:27:57.683
And so I gain.

00:27:57.683 --> 00:27:59.432
I get a personal trainer.

00:27:59.432 --> 00:28:15.412
She works with me, my teammate is across the country in the Bahamas training, and then we end up doing a year of triathlons leading up to Kona.

00:28:15.907 --> 00:28:28.704
We finally get to Kona, my teammate goes in the middle of Kona and, for those of you who watch Kona, they air it on NBC Sports and when it aired.

00:28:28.704 --> 00:28:38.214
And so, for those of you who watch Kona, you know the hobby Kona and you know where they take off.

00:28:38.214 --> 00:28:41.795
You know they do the swim, bike and run.

00:28:41.795 --> 00:28:44.574
They do the swim in the open waters.

00:28:44.574 --> 00:28:55.114
So, basically, how I do it is someone puts me in a boat or kayak and they swim underneath me.

00:28:55.114 --> 00:28:57.132
We do the swim that way.

00:28:57.132 --> 00:28:59.569
We do the bike.

00:28:59.569 --> 00:29:10.692
I hook up the back of a bike, which the last time I did it I was in the trailer adults like trailer which was a little bit easier than when I did the car I'm in.

00:29:10.692 --> 00:29:16.994
And then how we do the run, is they push me in a wheelchair, their wheelchair's designed for running.

00:29:16.994 --> 00:29:21.393
Is they push me in a wheelchair, their wheelchair's designed for running, and they push me in a wheelchair.

00:29:21.393 --> 00:29:33.173
So, in the middle of the car, my teammate goes this is hard because she's now pulling me- yeah, with a lot more resistance.

00:29:35.030 --> 00:29:58.127
And so of course they take us off the bike course because you have to make the bike and the swim and the run in a certain amount of time and of course the run is at the end, it's not in the middle, and so they take us off the bike course and she goes.

00:29:58.127 --> 00:29:59.573
This is hard.

00:29:59.573 --> 00:30:04.368
We go to the award ceremony and my aide looks at me.

00:30:04.368 --> 00:30:06.107
Who's my aide?

00:30:06.107 --> 00:30:09.594
Who was traveling with me at the time?

00:30:09.594 --> 00:30:13.092
I took a very good friend of mine to travel.

00:30:13.092 --> 00:30:15.890
It's also life-blooded, but my aide goes.

00:30:15.890 --> 00:30:22.692
Well, she did Bob and Megan in her age class and win the color Iron man.

00:30:22.692 --> 00:30:34.008
Originally I don't know, but she did, and now she was trying to use me to win her age class again.

00:30:34.008 --> 00:30:35.846
We finally figured that went out.

00:30:35.846 --> 00:30:37.854
My aide and nine, that's good.

00:30:38.806 --> 00:30:48.614
All I wanted, all I wanted after the Golden Iron man, was waffles, which my teammate, my cousin, which I will never do again.

00:30:48.614 --> 00:30:49.564
Who was with Emily?

00:30:49.564 --> 00:30:51.171
My cousin goes.

00:30:51.171 --> 00:30:53.451
You can't have those waffles.

00:30:53.451 --> 00:30:54.809
Which way is your boat?

00:30:54.809 --> 00:30:55.932
Which way is the Iron man?

00:30:55.932 --> 00:30:56.282
And I'm sitting at the Four Seasons Hotel.

00:30:56.282 --> 00:30:56.568
You can have those waffles.

00:30:56.568 --> 00:30:56.715
Which way you should vote?

00:30:56.715 --> 00:30:57.163
Which way you should find them?

00:30:57.163 --> 00:31:06.220
And I'm sitting at the Four Seasons Hotel in Konan, hawaii, and all I want is waffles.

00:31:06.724 --> 00:31:20.892
And so the next day after the Konan, when my teammate is so discouraged, my aide secretly goes to win, because that means I joke, now, do you want waffles?

00:31:20.892 --> 00:31:25.084
And I said yes, and she dips me on huge plate of waffles.

00:31:25.084 --> 00:31:37.452
My teenage is sitting there and the table gets worse and worse and I'm like, oh boy, there goes the work, which means they were all plate of waffles and, mind you, they were very good.

00:31:37.452 --> 00:31:42.795
And so, of course, my teammate decides to get married.

00:31:42.795 --> 00:31:46.108
My aide for posting, of course, posting.

00:31:46.108 --> 00:31:50.670
We had a Facebook page at the time and my aide posts.

00:31:50.670 --> 00:31:56.749
Well, team Wing had a defeat and Team Wing didn't make it and my aide got.

00:31:56.749 --> 00:32:03.731
My teammate got so mad at my aid that it was a whole big show.

00:32:03.731 --> 00:32:21.692
And so I decided well, if I ever get to do the cold iron man again, whether I'm triathlete, triathlons, I would never, ever, never, take a family member to do the cold iron van level of any triathlon.

00:32:22.244 --> 00:32:31.189
So in the meantime, I meet a triathlete called B-Tri.

00:32:31.189 --> 00:32:34.288
For us, they're based in San Soto, florida.

00:32:34.288 --> 00:32:36.614
They have always been based in San Soto Florida.

00:32:36.614 --> 00:32:37.578
They have always been based in San Salvador, florida.

00:32:37.578 --> 00:32:42.298
And what Be Try For Us does is they do?

00:32:42.298 --> 00:32:49.666
They put people in boats, they put people on back of bikes, they put people in chairs.

00:32:50.369 --> 00:33:00.176
And so in December of 2023, the team Be Try For follows me on Instagram.

00:33:00.176 --> 00:33:07.724
I didn't even know they were following me and they said hey, Win, you remember who we are right?

00:33:07.724 --> 00:33:18.155
And I had gotten a DM from Stephanie, who's the head of B-Tri-Fast, and she goes you still want to do a triathlon, don't you?

00:33:18.155 --> 00:33:21.670
And I've been calling to see if it's there.

00:33:21.670 --> 00:33:26.378
So I'm impressed and here we go.

00:33:26.378 --> 00:33:29.233
We'll go find you a triathlete buddy too.

00:33:29.233 --> 00:33:31.667
And this was you.

00:33:31.667 --> 00:33:33.852
And I'm like, okay, here we go.

00:33:33.852 --> 00:33:57.059
And so they found a triathlete buddy because one of their newborn members all he wanted to do was long distance triathlete and long distance triathlon, and most kids they work with don't have the capacity to do long distance triathlon.

00:33:57.059 --> 00:34:03.398
Only one person on the team has capacity to do long distance triathlon.

00:34:03.398 --> 00:34:15.715
They used to do spring triathlons and short distance triathlons, and so I'm like, okay, so B tried for us, I'm in the end zone.

00:34:15.715 --> 00:34:20.456
And so Steph goes okay, we're going to try this.

00:34:21.164 --> 00:34:24.655
And in December of 2023, I take my aid.

00:34:24.655 --> 00:34:29.534
We do Crash Daytona at Daytona Beach.

00:34:29.534 --> 00:34:33.411
Oh, wow, the Daytona Speedway.

00:34:33.411 --> 00:34:39.411
That was so cool and I still have pictures of it on my phone.

00:34:39.411 --> 00:34:47.293
And of course, you know that you have to get stupid up early to get to the swim store.

00:34:47.293 --> 00:34:54.469
And I had all those professional triathletes do it with me.

00:34:54.469 --> 00:34:56.465
We fast-forwarded and then, personally, I had to go to the airport.

00:34:56.465 --> 00:34:56.974
Professional triathlete do it with me.

00:34:56.974 --> 00:35:03.693
We fostered a line and then, personally, I had to go to the airport to fly back, and so it was a super long day.

00:35:03.693 --> 00:35:07.018
But I will not do that again.

00:35:07.018 --> 00:35:17.344
If I go to Kona and that's how we're going to do Kona I need to do a full triathlon with this person personally.

00:35:17.344 --> 00:35:23.858
Well, I know right now, as a matter of fact, I'm still in contact with VTRI.

00:35:23.858 --> 00:35:28.336
Well, I know right now something to do a full triathlon.

00:35:28.336 --> 00:35:33.114
And then Ironman knows that I'm bringing equipment in.

00:35:33.114 --> 00:35:34.978
Ironman is ready to go.

00:35:36.425 --> 00:35:38.965
That's awesome yeah.

00:35:39.266 --> 00:35:39.567
Yeah.

00:35:39.907 --> 00:35:46.018
My friend I have a good set of friends that they started a company called Best Damn Race.

00:35:46.759 --> 00:35:46.900
Yeah.

00:35:47.144 --> 00:35:50.431
Back many years ago, so they called it Best Damn Race.

00:35:50.431 --> 00:35:56.112
His name is Nick Zivlich Hopefully hey, nick, hopefully you're listening and his significant other, beth Shaw.

00:35:56.112 --> 00:36:00.253
I've known them both for years and they helped with the events.

00:36:00.253 --> 00:36:05.454
They helped with the crash, daytona, they helped with that, so they were out there.

00:36:05.454 --> 00:36:08.072
So that's a really crazy coincidence.

00:36:08.072 --> 00:36:08.753
That's awesome.

00:36:08.753 --> 00:36:15.532
Yeah, wow, that is unbelievable, and I hope that you're going to be able to get back to Kona, because it's something else.

00:36:15.532 --> 00:36:24.637
But now they're flip-flopping it, right, yeah, so the men they flip, they flip flop between France and and Kona.

00:36:24.637 --> 00:36:31.271
So one year that the guys will do the guys will do Kona, the girls will do France, yeah, yeah.

00:36:31.431 --> 00:36:37.972
Like passport and class is yeah, it's exactly on my bucket list.

00:36:37.972 --> 00:36:42.231
So if I do the Kona I ran in France.

00:36:42.231 --> 00:37:03.119
Oh my God, it's going gonna make so much fun because, for those of you who have ever been a spectator and any triathlon, the hype from the audience is just out of this world, especially in columbia so I've done five and they're yeah, you're absolutely right.

00:37:03.298 --> 00:37:07.251
When you get to the red carpet it's incredible, like I even tell my clients.

00:37:07.251 --> 00:37:13.612
I tell my clients, I'm like at least your first one when you get to the red carpet, you need to make sure you're alone.

00:37:13.612 --> 00:37:16.686
If somebody's in front of you, pass them.

00:37:16.686 --> 00:37:27.891
If or either pass them or slow down, because when you cross that finish line, you want that finish line to yourself, not only for the picture and the video, but because of the cheering that's going on.

00:37:27.891 --> 00:37:29.596
You want to make sure that cheering is for you.

00:37:29.836 --> 00:37:30.018
Yeah.

00:37:30.204 --> 00:37:34.927
Yeah, especially the first one, Especially the first one, exactly Put it in my element.

00:37:34.927 --> 00:37:36.152
Yeah.

00:37:36.192 --> 00:37:36.532
Yeah.

00:37:37.135 --> 00:37:37.856
That's incredible.

00:37:37.856 --> 00:37:39.753
I really hope that you get to do that.

00:37:39.753 --> 00:37:43.606
That'll be amazing and I watch it.

00:37:43.606 --> 00:37:44.789
I watch it every year, but unfortunately they don't.

00:37:44.789 --> 00:37:46.373
They don't process the age group.

00:37:46.373 --> 00:37:54.088
Most of the time it's pro and then they'll let it go, but they'll turn off the sound and they'll just let the on, let it go.

00:37:54.088 --> 00:38:00.809
So last year, I think was the last year yeah, last year, I think was the last year that it was the iron nun was.

00:38:00.809 --> 00:38:04.496
I think last year was the last year that she did it when she's like 92.

00:38:05.699 --> 00:38:12.217
Yeah, we have some pretty inspirational triathletes out there.

00:38:12.217 --> 00:38:21.909
Those inspirational athletes, if you guys look up T-Plate yeah, the win is based off T-Pike.

00:38:21.909 --> 00:38:24.449
Yeah, the win is based off T-Pike.

00:38:24.449 --> 00:38:29.072
And if you look up, oh, what's the other one?

00:38:29.072 --> 00:38:31.237
Ansley's Angels.

00:38:31.806 --> 00:38:32.670
Ansley's Angels yeah.

00:38:33.065 --> 00:38:34.230
Ansley's Angels.

00:38:34.230 --> 00:38:40.315
They don't do triathlon so much as T-Pike did.

00:38:40.315 --> 00:38:48.458
I should say I almost had the opportunity to meet T White in Kona, but I missed that.

00:38:48.458 --> 00:39:03.579
I missed that they were doing a press event in Kona when we were there and then, unfortunately, dick died and then Vic died of complications from cerebral palsy, his lungs.

00:39:03.579 --> 00:39:10.525
But Vic and Dick were older to begin with and so.

00:39:10.525 --> 00:39:17.887
But Dick started all this when Vic was young and Vic just.

00:39:18.949 --> 00:39:22.393
You'll find out that people with ctr are done with junkies.

00:39:22.393 --> 00:39:28.369
So rick loves it and they did the boston marathon.

00:39:28.369 --> 00:39:41.875
And when the boston bobbins went off, they were in the middle of the boston marathon and dick said, oh, we're not doing this anymore doing it.

00:39:41.875 --> 00:39:45.721
So he re-evaluated what he was doing with the silent.

00:39:45.721 --> 00:39:52.494
Of course, the son, who was non-verbal, loved it so much he wanted to do it even more.

00:39:52.494 --> 00:39:59.458
So unfortunately, those two great legends had passed away.

00:40:00.244 --> 00:40:11.532
And if you also look up Walk With K-P-Z, walk With K-P-Z is Brent and Kyle Pease and they're still doing it.

00:40:11.532 --> 00:40:14.655
The boys won the Carolina man.

00:40:14.655 --> 00:40:17.753
Kyle has cerebral palsy.

00:40:17.753 --> 00:40:30.282
I fortunately met Kyle and he's a spin fire and a dog bite and Brent and Kyle has a foundation based in Atlanta.

00:40:30.282 --> 00:40:32.690
I went down there.

00:40:32.690 --> 00:40:51.233
We went down there to do a race with them and of course the boys were looking at the gold, VA was looking at Brent, I was looking at Kyle and someone took a picture of that and I'd be like, well, that should be good.

00:40:51.233 --> 00:40:57.233
And so, yeah, we had been done with that.

00:40:57.233 --> 00:41:04.632
And so Brent and Kyle do at the labor they still do, and I have to double check.

00:41:04.632 --> 00:41:05.856
Brent and Kyle Pease do at the later.

00:41:05.856 --> 00:41:06.677
They still do an ISW.

00:41:06.677 --> 00:41:09.005
But Brent and Kyle Pease do a road race in Atlanta.

00:41:09.005 --> 00:41:14.487
They gather all the teams and I fly in as the only one.

00:41:14.487 --> 00:41:25.010
I remember of Walk with KP and so, but walk with KPS marathons and they didn't sell.

00:41:25.030 --> 00:41:25.512
Road races.

00:41:26.652 --> 00:41:27.932
Dead carina.

00:41:27.932 --> 00:41:41.297
They didn't bring the whole entourage with them and their families involved, and so, yeah, those are a couple of legends that you guys need to look up.

00:41:42.498 --> 00:41:49.601
Definitely, and I'm going to post those links in the show notes so you'll be able to see that.

00:41:49.601 --> 00:41:51.041
So let's step back a minute.

00:41:51.041 --> 00:41:54.063
What keeps you going, Win?

00:41:54.063 --> 00:42:00.867
I mean I know that you had an incredible childhood growing up.

00:42:00.867 --> 00:42:06.076
I mean you had obviously some issues after your parent, after your mom died, but you got over it obviously.

00:42:06.076 --> 00:42:17.393
But with somebody that and I'm looking forward to as far as other people go, giving them some sort of inspiration what keeps I?

00:42:19.175 --> 00:42:40.432
don't know, I don't know and I people have been asking me that a lot lately and after five hours of that surgery, that's the only time people will see me grumpy because I'm having that surgery in a week and, yeah, a little of a week.

00:42:40.432 --> 00:43:04.389
I know, being my doctor again that's a long story and so that has something to do with cp, but I guess, I guess I have the winning spirit and I'm here to show people that they can live the best life possible despite their own disabilities yeah, and I see that and look at I mean people, you gotta.

00:43:04.730 --> 00:43:08.132
If you're not watching the video, it's on YouTube and I have a.

00:43:08.132 --> 00:43:09.733
The YouTube channel is in the show notes.

00:43:09.733 --> 00:43:12.836
But if you just see Wyn smiling, it's an incredible.

00:43:12.836 --> 00:43:14.418
It's an incredible thing that you see it.

00:43:14.418 --> 00:43:15.860
Just it lights up your frigging.

00:43:15.860 --> 00:43:18.141
It lights up your frigging life when you see her.

00:43:18.141 --> 00:43:20.528
She's amazing.

00:43:20.528 --> 00:43:27.155
So even if you only just watch a piece of this, go on to the YouTube and check out the video, but that's amazing.

00:43:27.155 --> 00:43:32.577
So you've written I Win, which is obviously what that is.

00:43:32.577 --> 00:43:34.269
That's more of a biography.

00:43:34.911 --> 00:43:49.313
Yes, and I've written a couple other books a novel entitled the View From my Heels Hills as in a high-yield shoe, which is about a fashion designer.

00:43:49.313 --> 00:44:07.039
All is a fictional novel about a fashion designer with a disability, and so that's out there, and then I'm working on my 13th book, my 14th book and my 15th book.

00:44:07.039 --> 00:44:40.324
The 13th book is going to be about podcasting how to do broadcasting and my person, beth the better woman, was a disability on that, and then the 14th book is going to be another novel, and then the 15th book is going to be a surprise book that no one knows about other than a couple people, and so it's going to shock people, because this is way out of my comfort zone being on 15 books, but I was told to do this in 2010.

00:44:40.324 --> 00:44:58.476
They started the person that told me to do this in 2010 was actually my mom, while she was dying, and she said you need to be in a safe place to do this and to write this 15th book.

00:44:58.476 --> 00:45:12.096
I'm going to start Eel Off Easy with I Come A Win, so you can write I Come A Win in your sleep, basically, and so then I want you to write another book, but it's not going to be.

00:45:12.096 --> 00:45:12.818
I Come A Win.

00:45:12.818 --> 00:45:26.211
It's going to be a totally different book and it's going to be a little bit out of your control zone, but out of your control and now that I'm in a safe space to bite and live my life.

00:45:27.012 --> 00:45:32.034
Because she knew that her sister was abusing me.

00:45:32.034 --> 00:45:45.061
She had eyes and back of her head and she asked when she woke up from body surgery of all things, the first words out of her mouth were not name, name, name.

00:45:45.061 --> 00:45:48.063
If he's all in love, nope, who's taking care of it?

00:45:48.063 --> 00:45:53.311
Who's taking care of it?

00:45:53.311 --> 00:45:59.128
When this was after six-hour brain surgery, yes, and I wasn't there.

00:45:59.128 --> 00:46:01.579
I was in Aspen and I had a commitment that week, but I wasn't there.

00:46:01.579 --> 00:46:06.570
I was in Aspen and I had a commitment that week, but I wasn't there.

00:46:06.570 --> 00:46:14.108
The fact that she goes, who's taking a grip when that's the person who was on the mouse?

00:46:14.108 --> 00:46:16.248
She didn't even name people on the list.

00:46:16.851 --> 00:46:39.717
I'm like, okay, dedicated mom right there, when you just wake up from brain surgery, you're asking about your child and she knew I was there and in Aspen, but she also knew I was still coming down infection in the hospital.

00:46:39.717 --> 00:46:46.003
So when you walk well, now I make you walk into the hospital with masks.

00:46:46.003 --> 00:47:05.556
But when you walk into the hospital, be careful who you're around, because when you ever walk into the ER, yourself being sick and yourself, you don't know who's going to pick up your infection next.

00:47:05.556 --> 00:47:06.557
And I don't.

00:47:06.557 --> 00:47:10.605
Operating rooms are still under violence.

00:47:11.188 --> 00:47:29.695
I don't know whether she picked it up in the ICU, or whether she picked it up from the operating room going to the ICU, or whether she picked it up getting off of Skype for Life going into the ER and Denver I don't know.

00:47:29.695 --> 00:47:34.612
But infections lay dormant, so do vitality items.

00:47:34.612 --> 00:47:38.034
So I know that's a combination.

00:47:38.034 --> 00:47:55.561
And so my poor mom, who died of her infection and the body was so weak to not only tackle the brain and the areas of healing, but the body was so weak that it couldn't tackle the infection or loss.

00:48:11.467 --> 00:48:20.498
Yeah, it's something that we definitely need to be careful of and I think it's great advice that, like you said, if you're going in for a long stay into the hospital, you need to be very point.

00:48:20.498 --> 00:48:37.856
Where you're just about to publish 14 and 15 books and you've been through Iron man, kona and Clash and you speak around the country, I mean it's just an amazing thing that you don't let anything stop you.

00:48:37.856 --> 00:48:43.139
So, ladies and gentlemen, here this woman has put out 15 books.

00:48:43.139 --> 00:48:46.288
She has cerebral palsy.

00:48:46.288 --> 00:48:51.278
So if you ever had an inclination of doing anything like that, here's your example.

00:48:51.278 --> 00:48:53.728
Right, here's your example.

00:48:53.728 --> 00:48:59.679
It's all about determination and Win's got it all for all of us.

00:48:59.679 --> 00:49:02.835
So if you want to do something, go do it.

00:49:02.835 --> 00:49:04.931
Don't let anything stop you.

00:49:04.931 --> 00:49:05.733
Wynn didn't.

00:49:05.733 --> 00:49:11.972
So, anyway, that's my soapbox, so let's just real quick.

00:49:11.972 --> 00:49:16.476
Before we end, would you tell me what a typical day for you is now?

00:49:16.476 --> 00:49:17.628
I see that you.

00:49:17.628 --> 00:49:21.992
It looks like you have a beautiful home, from what I can tell you still have.

00:49:21.992 --> 00:49:22.934
Yeah.

00:49:22.974 --> 00:49:25.802
Hindbeat and do you guys have a beautiful home?

00:49:25.802 --> 00:49:33.735
From what I can tell, this is my condo behind me and the reason why I'm sitting here well-plowed is because I'm in that condo that was.

00:49:33.735 --> 00:49:47.295
I'm in the condo complex that the first was tried in the country, and if you go to Willow and I can pin it to Arizona, you'll see my house and the concept behind it.

00:49:47.295 --> 00:50:02.097
And the concept behind it is the developer has a child with a disability a rare disability and he said, well, where's my child going to live when I die?

00:50:02.097 --> 00:50:03.266
Baseboard?

00:50:03.266 --> 00:50:04.875
And he said, well, where's my child going to live when I die?

00:50:04.875 --> 00:50:16.717
Basically, he scoured across the country and he took all his funding with other partners from his law firm and he scoured across the country before coming up with this project.

00:50:16.717 --> 00:50:17.746
Blue Is All.

00:50:17.746 --> 00:50:28.282
And so he opened that up to the public not only his daughter's disability, but he opened that up to the disabled population.

00:50:29.206 --> 00:50:33.396
I found out about it via Google within 24 hours.

00:50:33.396 --> 00:50:36.052
I was an aspirant at the time.

00:50:36.052 --> 00:50:50.257
I was buying a house in Phoenix, arizona, via FaceTime and I know that's a little bit nuts, but that's how we did it and I moved down here in March of 2022.

00:50:50.257 --> 00:50:56.597
And 2021, sorry, I was down here in 2022.

00:50:56.597 --> 00:51:03.737
And so, march of 2022, I packed my own van.

00:51:03.737 --> 00:51:13.918
I had a handicapped accessible van and I packed it with a double bank, my wheelchair and an assistant that I barely knew.

00:51:13.918 --> 00:51:27.465
We took the 10-hour drive to Phoenix Arizona, and Phoenix Arizona has been my forever home, will continue to be my forever home Now.

00:51:27.465 --> 00:51:39.355
Hence, I'm very home these days too, because I have to due to my own disability, I have to take public transportation.

00:51:39.355 --> 00:51:48.291
They've been all I have on my own vehicle and because car insurance is way too expensive down there and so it's ridiculous.

00:51:48.713 --> 00:51:58.447
So my team has kindly suggested that I put my vehicle on limited use and only have seven people driving, which is okay.

00:51:58.447 --> 00:52:10.192
We have public transportation, but I'm usually up by 545 on Monday morning to get myself to PT because of public transportation.

00:52:10.192 --> 00:52:41.376
I have weight on there and then I come home, do work and then I make myself take a lunch break down at my clubhouse at noon where I get to hang out with all my friends, next door neighbors and whoever's in the clubhouse, and then I go back to work or go off to Doc's appointments and go off to whatever I need to do.

00:52:41.376 --> 00:53:14.697
Oh, that sounds like a great life when you mentioned a daughter and a lawyer and medical professionals that help me beyond the scenes.

00:53:15.280 --> 00:53:17.327
And so, yeah, I have help.

00:53:17.327 --> 00:53:33.927
I have help when I need it and unfortunately I will need more help after my dad's surgery, which we're just not used to asking for help when is not used to pushing the multi-button to ask for help.

00:53:33.927 --> 00:53:42.248
So it's cool right now to get used to asking for help, but it's only because of my dad.

00:53:42.248 --> 00:53:49.867
When I will be back up on my feet slowly but surely and then I'll quit asking for help and be in the when I will be back on my feet totally with joy, and then I'll quit acting for an old man.

00:53:52.603 --> 00:53:59.931
Yeah, no, I have no doubt in the world that you will come out of this stronger and better.

00:53:59.931 --> 00:54:09.646
If there's anybody in the world that's going to survive this back surgery and come out stronger, it's you, Wynne, no question.

00:54:09.646 --> 00:54:19.588
But I really hope that you're able to come through it with as little pain as possible, and you know that's probably going to be.

00:54:19.588 --> 00:54:22.193
I'm not going to ask you about exactly what it is.

00:54:22.659 --> 00:54:23.862
That public knowledge.

00:54:23.862 --> 00:54:25.425
That public knowledge.

00:54:25.425 --> 00:54:27.070
I'll go into it Basically.

00:54:27.070 --> 00:54:28.612
I'm going to give you this analysis.

00:54:28.612 --> 00:54:36.813
Basically, I had what they now call a cell back surgery due to CP.

00:54:36.813 --> 00:54:42.489
I don't know how it felt and for 16 years no one told me.

00:54:43.199 --> 00:55:00.159
By the time I got and I made a promise to myself because my back felt weird myself, because my back felt weird, and my back felt weird as I was doing colonoscopy and as I was doing all this triathlete stuff myself, my back felt swollen and abnormal.

00:55:00.159 --> 00:55:21.751
So I made a promise to myself when I got down here, when I got to the biggest city with better medical there, I made a bunch of the first surgery I was having done in that big city, wherever that big city was supposed to be or wherever further than it ended up being Phoenix, arizona.

00:55:21.751 --> 00:55:32.452
But I made a commitment to myself that I was going to take care of myself because I had lost my dad and he did what to take care of himself.

00:55:32.452 --> 00:55:36.972
And so by the time he died it was six days after the diagnosis.

00:55:36.972 --> 00:55:41.190
So I went and got a scoliosis draft.

00:55:41.190 --> 00:55:47.240
They go, you are fine, you have scoliosis, we can fix that.

00:55:47.240 --> 00:55:48.021
Now go away.

00:55:48.021 --> 00:55:55.610
I said no, I'm not fine, something is wrong with my back and I want to go get x-rays.

00:55:55.610 --> 00:56:01.295
And I had a medical liaison there with me at an original appointment.

00:56:01.295 --> 00:56:07.188
And then they go fine, we'll give you the orders to go get x-rays.

00:56:07.188 --> 00:56:08.853
I go get x-rays.

00:56:11.905 --> 00:56:20.329
By the time the doctors look at them, they go, oops, something is wrong and, like I told you guys, my back is swollen.

00:56:20.329 --> 00:56:30.494
It's not normal and what led up after me is the bottom of my final fusion had completely failed.

00:56:30.494 --> 00:56:35.494
I have a screw that attached to my bone and it's a mess.

00:56:35.494 --> 00:56:36.297
My neck is a mess.

00:56:36.297 --> 00:56:40.831
And so they said well, we'll give you back injections.

00:56:40.831 --> 00:56:46.952
And I said I can try back injections, see how it helps.

00:56:47.400 --> 00:56:56.474
The back injections did not help and so my next bet is surgery, and that's going to be happening April 23rd.

00:56:56.474 --> 00:57:00.927
But always be a medical or medical advocate.

00:57:00.927 --> 00:57:08.909
Or they say, bring someone with you, but don't trust these doctors.

00:57:08.909 --> 00:57:17.887
When you know something is wrong, especially if you're training for a colon iron man, always trust your body.

00:57:17.887 --> 00:57:41.021
You know your body well and even if you feel little hints of pain in your legs, even if you're running a mile to train for a colonized man or three, but in the marathon or triathlon and you feel little twins of pain, and the twins of pain gets worse and you can't walk.

00:57:41.021 --> 00:57:45.768
Get a check, though yes, definitely that.

00:57:46.389 --> 00:57:47.851
True words were never said.

00:57:47.851 --> 00:57:57.456
We in triathlon community some of the coaches we always have this saying trust yourself, trust your body and listen to it.

00:57:57.456 --> 00:58:02.384
Listen to your body and when it's saying that something's wrong, figure out.

00:58:02.384 --> 00:58:16.510
Get it checked out, whether by your personal care physician or chiropractor or orthopedic surgeon, neurosurgeon, whatever Whoever you're being seen by, just get it checked out.

00:58:16.510 --> 00:58:20.010
So, whatever you're doing, you don't end up making it permanent.

00:58:20.010 --> 00:58:21.621
Let's make sure that it's temporary.

00:58:21.621 --> 00:58:22.702
You fix it and you're out.

00:58:22.702 --> 00:58:23.744
That's great.

00:58:23.744 --> 00:58:24.583
That's great, wow.

00:58:24.583 --> 00:58:25.085
And you're out.

00:58:25.085 --> 00:58:25.644
That's great.

00:58:25.644 --> 00:58:26.726
That's great, wow.

00:58:26.726 --> 00:58:30.690
Wynne, I am so honored that you joined us today.

00:58:30.690 --> 00:58:37.257
I am going to make sure that all of your books will be linked in the show notes.

00:58:40.021 --> 00:58:42.086
What's the best way for people to get in touch with you?

00:58:42.086 --> 00:58:44.153
Oh, go to my website.

00:58:44.153 --> 00:58:52.329
It's ceodisabilitywebelacecom and you can find my information there.

00:58:52.329 --> 00:58:58.186
You can also find my assistant's books, who happens to be my BFF.

00:58:58.186 --> 00:59:00.784
She took us there, my lead.

00:59:00.784 --> 00:59:14.248
She's like a book on all of it and she's got all stuff going and she's a disabled athlete not a triathlete by any means, but she's a disabled athlete.

00:59:14.760 --> 00:59:15.744
Athletes and athletes.

00:59:15.804 --> 00:59:33.322
yeah, At this special event so you can go to my website, codisabilityweaverlesscom, or my podcast could be found anywhere and everywhere, except for Google, because Google's no longer in existence.

00:59:33.322 --> 00:59:44.500
Listen to the Android users that need to find a new all to listen to podcasts on their Andrives, because Google.

00:59:44.500 --> 00:59:48.929
Google never necessarily got up speed.

00:59:48.929 --> 00:59:54.989
Apple actually got up speed and there's a lot of podcasts out there for Androids.

00:59:54.989 --> 00:59:58.710
But it can be found on smart speakers.

00:59:58.710 --> 01:00:02.409
It can be found anywhere, and so yeah.

01:00:02.710 --> 01:00:09.472
Right and her is called CEO Disability.

01:00:09.672 --> 01:00:09.813
Yeah.

01:00:10.059 --> 01:00:13.228
Conversations about disability, awesomeness and awareness.

01:00:13.228 --> 01:00:14.842
Yeah so you can find.

01:00:14.842 --> 01:00:17.731
You'll be able to find that anywhere you can get your podcasts.

01:00:17.731 --> 01:00:25.110
Yeah so, Android most people on Android listen to it on Spotify, so, and so you can catch with there on Spotify.

01:00:26.362 --> 01:00:34.068
Now that Google Podcasts has gone out the door, but I need to do it and thank you, brent, for the heads up on that.

01:00:34.068 --> 01:00:41.992
So now I have to tell my listeners to go over to Spotify and subscribe over there.

01:00:41.992 --> 01:00:48.465
Follow, not subscribe follow it's follow on Apple Podcasts, it's follow on Spotify.

01:00:48.465 --> 01:00:56.369
Oh, and do me one more favor Please rate and review the Life Challenges podcast.

01:00:56.369 --> 01:01:03.918
All it does is help the Apple algorithms, the Apple launches, be happy.

01:01:03.918 --> 01:01:13.244
And so please rate and review Brad's podcast because, as an independent podcaster, he puts a lot of work into this.

01:01:13.244 --> 01:01:17.887
I know it because I do a podcast myself, as he does to serve.

01:01:17.887 --> 01:01:27.045
So please rate and review every podcast that you see fit, even if it's not ours, even if it's not Brad's online.

01:01:27.045 --> 01:01:36.389
Just support the independent podcasters and just support everyone, and let's make this world a better place and be kinder to humans.

01:01:37.391 --> 01:01:37.793
Excellent.

01:01:37.793 --> 01:01:41.391
That's a great note to say goodbye on.

01:01:41.391 --> 01:01:43.025
So thank you again, wynn.

01:01:43.025 --> 01:01:56.190
It has been an honor, it has been an honor, it has been a pleasure and I have a feeling that we will be having some more conversations in the future because so much stuff going on.

01:01:56.190 --> 01:01:59.224
So we will have Wynn on again somewhere in the future.

01:01:59.224 --> 01:02:01.469
Thank you everybody.

01:02:01.469 --> 01:02:02.751
Thank you for listening.

01:02:02.751 --> 01:02:06.849
Like she said, follow rate even if you don't like it.

01:02:06.849 --> 01:02:09.483
Rate it bad, but just that, and that's fine too.

01:02:09.483 --> 01:02:14.726
I appreciate it if you didn't, but if you don't find this as entertaining as we do, that's fine.

01:02:14.726 --> 01:02:17.295
But either way, we appreciate you.

01:02:17.295 --> 01:02:21.126
We appreciate you, wynn, and we will see you in the next episode.

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